Co-Designing a User-Centred Digital Portal to Support Health-Related Self-Management for Stroke Survivors

Stroke is a leading cause of death and disability in the UK, with around 90,000 new cases annually. Stroke survivors, along with their families, face substantial challenges when managing this long-term condition. Digital tools, like patient portals, emerge as practical solutions, empowering stroke survivors with digital tools for improved self-management. However, the best practices for supporting these individuals remain complex, given the diversity in disabilities among stroke survivors, each with unique health and care needs. This paper discusses the co-design of a user-centred patient portal involving three stakeholder meetings and two patient group meetings, along with preliminary results from qualitative interviews with stroke survivors and caregivers. This study also explores potential design and usability challenges, offering insights into the complexities of creating a patient-centred digital tool for stroke management.