From Isolation to Inclusion: Innovating Digital Health Solutions for Rare Diseases - The Potential of Crowd-Based Requirement Engineering

This contribution outlines the vision of utilizing Crowd-Based Requirements Engineering to create or customize digital health solutions for those afflicted with rare diseases, centering on facial palsy. It proposes leveraging the crowd of patients, caregivers, and medical professionals to enhance the requirements engineering process and foster a supportive network, while simultaneously promoting inclusion and understanding among users. This approach further acknowledges the inherent challenges of engaging a diverse crowd to meet the specific needs of individuals with facial palsy, aiming to integrate their experiences directly into the development of impactful digital health solutions.