Hurdles for Genomic Data Usage Management

Our genome determines our appearance, gender, diseases, reaction to drugs, and much more. It not only contains information about us but also about our relatives, past generations, and future generations. This creates many policy and technology challenges to protect privacy and manage usage of genomic data. In this paper, we identify various features of genomic data that make its usage management very challenging and different from other types of data. We also describe some ideas about potential solutions and propose some recommendations for the usage of genomic data.